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12-21-2009, 06:59 PM
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#1 |
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 LUPUS ??
Any chance that anyone here has lupus? I do....was diagnosed way back when I was 44...I consider myself blessed...PRAISE GOD...still no major organs involved...It's centered in my central nervous system..which makes for some pretty hairy times emotionally ..with the resulting mood swings ( menopause was a real thrill with the double mood thing going..I can tell you)...
Since starting Atkins, back in September I've not suffered a flare..and the nicest part is I haven't had the brain fog that was SO much a part of my day to day life...I never expected this way of eating to have such a positive effect on the lupus..but it has...Could be it's a combination of the changes in eating AND the fact that I've been so relaxed and mellow lately.....don't know...just know I've enjoyed it... BUT...... this morning am getting my butt kicked.....Clear to the bone fatigue...muscle weakness/pain..... joint pain.... brain fog....and depression...un-wanted tears...the whole ball of wax.... Pretty sure I know what brought the flare on...but doesn't help knowing when I still have to ride it out ... Not looking for sympathy...mostly just venting and wondering if anyone else in this forum has lupus too... Lynn |
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12-21-2009, 07:07 PM
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#2 |
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I don't, and I don't know anything about it... but it sounds awful. Hope you feel better soon. If you know what caused this flare up, is it something you can avoid in the future?
FWIW, eating low carb has "cured" a host of ailments in many people. |
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12-21-2009, 10:58 PM
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#3 |
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LOL....only if I can completely avoid all future family gatherings....the one son (lives in San Jose) cannot make it home on Christmas itself, so our "party" was this past Saturday night...too many people, too small a space, waaaay too much noise and too long a stay for me to be able to maintain any level of calm...BUT.......
Seeings as I am THE MOM....and THE GRANDMA...I think they'd kindda frown if I skipped out on it... FWIW ????? |
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12-21-2009, 11:51 PM
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#4 |
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FWIW... that's code for For What It's Worth.
 Family... I hear ya. We went to my family party last week. It was the best one yet. Absolutely NO drama. Amazing. First totally comfortable party in 25 years. Seriously. And you know what... you need to put yourself higher up on your priority list. If what you went through made you sick, you shouldn't be expected to do it. Does your son know?? He should. It would be "ideal" if you could do it their way... but you have Lupus and that over-rules their "needs". It's just not good for your health. Could you do something with the grandkids another time? I don't know... early in December or even in January? There has to be a compromise so you don't get ill. If they don't "get it"... maybe they just need to clearer picture. I just hate to think of you feeling this way because you put yourself through something that made you uncomfortable. It's not right. I think you tapped into my maternal vein... LOL |
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12-22-2009, 12:23 AM
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#5 |
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LL -
I got a little info last January when the doctor was trying to figure out why I kept getting swelling with fluids in the knee. She diagnosed gout, but said my blood work might be lupus. I said, "Thank you, but no. Give me gout, please." She did, so I dodged the bullet. Never be afraid to share the responsibilities (stress) with others. Say, "OK, I'll do "this" or "that" but YOU have to do "whatever." Or simply say, I really don't feel well...how about (and offer another solution.) I hope you get back to your "equilibrium" soon!! Indeed, I hope the Atkins plan makes your life better overall. Seems like it! My best... Toni |
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12-22-2009, 05:54 PM
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#6 |
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My oldest daughter is the one who held the party...bless her heart...she's a single mother of a very resentful A.D.H.D. 15 year old boy..and works full time as a waitress, part time with a catering bunch and gives haircuts
(is licensed beautician) on the side..She saw, three years ago, that the whole thing was becoming way too much for me and took it over...The only thing I have to do is show up and bring the birthday cake (Jesus' birhday ya know) She pretty much did all the rest AFTER working a full shift that morning... This year I made a huge green salad, with all the legal veggies, a big platter of deviled eggs, big bowl of fresh steamed green beans..all so SnicksD and I could eat pure...also substituted a dozen mini (2 bites each) cupcakes for the usual sheet cake...no leftovers which before always got sent home with Grandma... The problem and stress-builder was the fact that an ex-sister-in-law of the oldest daughter came (we're all still very close to that family) and brought two super active kids...which normally would've been just fine.. But the 15 year old has been off his meds...(says he doesn't like the way they make him feel) so he was extra touchy...He and I neither one deal very well with a lot of people and noise..and it didn't take long to set him off..which stressed not only me but his mom too...add to that his mom's new boyfriend (his first exposure to the whole bunch at once) ..everyone trying to talk over the noise...well....you get the picture... My three daughters all live near me...and all understand the lupus and the level of stresses that go with it...The 3 sons ( one still here at home, the other two out of the area) KNOW that I have lupus, but don't fully understand it...they have the tendency to still see me as the strong,capable mother who raised them...which in a way is sort of a compliment...but getting harder to live up to... The two youngest grandkids I see ALL of the time...and we do a lot together throughout the year...the others are all grown and we keep in touch via facebook.. and phone calls...Christmas has never been my holiday...it was my mother's...and the one son (no kids of his own) misses those Christmases...so we all try to accomodate him...by having this "traditional Christmas"..Personally I've never liked the idea of the calendar dictating to me when to do something......I'm more of a "just 'cause" kind of gift giver...so I do a lot of that during the year and by December...bah humbug...I actually dream of a time when I can quietly celebrate the REAL Christmas and leave all the busyness behind..ahhhhhhh sigh.... Long story short....too late for that...lol...I survived...today is a new day and I WILL make it a day of rest...for me... Toni....Thank God for Gout ! ! ! I'm SO glad you dodged the bullet.... Tril....Thanks for the mothering... Lynn |
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12-23-2009, 12:11 AM
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#7 |
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Ah, I truly empathize! ADHD kids do take a lot of effort...have a 13-year old grand-daughter who is so much better on a mild med...a terror when off. Her mom, my daughter, struggled so much with the decision last year, but it transformed her.
I learned the "Bring Atkins approved stuff to the party" trick when I started Atkins last January. Then, I at least have something to munch on IF I am fast...my offering, being fresh and inviting, is devoured by chip stuffers so fast I have to be VERY quick! lol! Your daughter sounds terrific, working SO hard. Hope you survive the rest of the holiday season! My best... Toni |
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12-23-2009, 01:03 AM
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#8 |
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My 20 yo son has ADHD so I "get it". It's hard for others to understand and deal with... but a thousand times harder for the kid with it. My son went off his meds at 16. It was his choice. It took some time but he learned ways to manage himself. One suggestion? Your daughter should support his choice to not take the meds... for two reasons. One, if he should decide he needs them again, he'll ask because he won't feel like "they" were right and he was wrong and admitting he needs help proves it. Also, kids can learn to self monitor. It's terribly hard, but it can be done. That's why so many adults with ADHD function well. It's learned and it takes time/effort. One other suggestion... give this boy permission to excuse himself from situations that are difficult to control himself in. Maybe he has that... if not, it should be considered. Sounds like the party was too stimulating. Those situations often are... imagine being in a room with 20 loud tv sets all on different channels that all rotate every few seconds and somehow you're supposed to have a normal conversation with several of them at once. That's ADHD. No wonder they just want to retreat into their room... or a book.. or a video game. It's how they turn off the tvs.
My son went back on med his first semester of college. His idea, his choice. The older he gets the better he is able to monitor his behavior/responses to things. He still has a way to go, but the progress is very encouraging. Well... looking on the bright side, you've got another year before you have to do it again. LOL Oh yeah... a long time ago a very good friend of mine had her son diagnosed with ADHD. She agonized over medicating him. She didn't want it to "change who he was"... I told it wouldn't change him, it would allow him to be who he is. If your child needed glasses, you'd get them, right? If your child was born a diabetic, you'd give him insulin, right? Same things. Kids with ADHD are born this way. It's how they're wired. Finding the medication that helps your child live a fuller, more satisfying life... it's a no brainer, IMHO. |
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12-24-2009, 10:52 PM
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#9 |
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The help on this board is tremendous! Your experiences help others. I'll share this with my daughter. Thanks!
A very Merry Christmas Eve to all! Happy Holidays! Toni |
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01-21-2010, 11:45 PM
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#10 |
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I also have Lupus and just started Atkins this week. I am in the same boat as you that it hasn't caused any issues with my internal organs yet. When I have flare ups, its my joints...the swelling, the pain, etc. I am having a mild flare up this week but I think it is stress from my job. When I keep my stress down and get enough sleep, I am golden.
I was actually searching for others with Lupus and on Atkins to see if there were any problems with the high protein. How long have you been on Atkins? |
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01-21-2010, 11:47 PM
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#11 |
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06-02-2010, 05:24 PM
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#12 |
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Bonnie,
Sorry it's taken me so long to reply...but life sort of demanded a front seat for a while so my computer time suffered.. I've been on Atkins since the end of September..and as of yesterday I'm down 39 pounds...one pound to go and I reach my first major goal... It's recommended that you have a complete blood panel testing done when you first start and then again... say in six months...Due to other health concerns I have a panel done every year..My doctor (female) who not only knows about this WOE but UNDERSTANDS it...suggested that I go ahead and have my usual January testing even though I'd been on the "diet" for only four months ...The results are in...and everything is in normal range...all liver and kidney numbers included...which, to me, indicates that the EXTRA protein hasn't done me any damage...AND, I might add, I've gone from "OMG she's going to drop dead from a stroke at any minute" to "Low risk"...My extremely high blood pressure, for which the main doctor (male) in our office wanted to put me on a pill ..has gone down to super normal... As you well know...no two lupus patients are the same...and in each of us...no two days are the same...heck...sometimes no two hours are the same...I could drag this clear down to the nano-seconds..lol...but you get the idea...Work with your doctor...and IF ( my own opinion here) your doctor will not work with the Atkins plan...look around for a good doctor who will....Because none of my vital organs have been affected, I've never been to a specialist...I've been able to stick with my G.P.....My doctor (the female) knows more about Atkins, than some, mostly because I proved, to her that it works when I lost 65 pounds doing this about six years ago...which I regained because, back then, I used Atkins as a diet and not a way of life...sigh, I DO learn...eventually.... How long since you were diagnosed with lupus? I'm pushing 69 and was diagnosed back when I was 44... One more thought and then I'll close...When it comes to the EXTRA protein...keep in mind that as you progress in this WOE the amount of protein goes down and levels out.. Best of luck...You've made a good decision here...keep posting.. Lynn |
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06-02-2010, 06:31 PM
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#13 |
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That was a great reply to Bonnie, Lynn. Even tho I am fortunate to NOT be suffering from Lupus, just a note to say my 6 month blood work came back, for the second checkup since starting Atkins, with PERFECT blood levels, so this WOE is so good for anyone with high lipid numbers. I'm also in the "low-risk" group now, for the second time in a row!
Toni |
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07-02-2010, 05:42 PM
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#14 |
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Congratulations on the blood work Toni....doesn't it feel great? not only being A LOT healthier, but also proving the nay-sayers wrong?
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09-02-2010, 04:16 PM
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#15 |
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Hi! I'm also someone suffering from lupus. All started with joints pain after my first child was born. But they put it down to reumathoid arthritis. I took some tablets but then after a while I didn't have any pain and came off the tablets and was fine until after 6 years my second one was born and it all started again. This time I had a new doctor and they did very thorugh investigations and I was diagnosed with lupus. (was 24 first time and then 30) It was the shock of my life and I only wish I could raise my children up. I am on meds now and was on hormons at one point and that made me pile on weight, which I haven't been able to shed off. Also I do get depressed although I couldn't understand it before - just when I looked back at the situations I could see that stress made me just eat and sit in front of telly. So now I'm trying Atkins. Today is only my 4th day so I don't know how it's affecting me but I am desperate to get my weight down...
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11-03-2010, 12:57 AM
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#16 |
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Amadeus,
Ahhhhhhhh yeh STRESS...boy can I ever relate...The first thing the doctor told me (after dropping the L. word on me) was to avoid stress...what a joke....especially since soon after I was diagnosed I became pregnant.... at 45...a real blessing, in the long run, but a total shock to begin with...both physically and mentally.... This WOE has been great for me....eating this way seems to be less stressful for my body...I don't fully understand why that's so...I'm just grateful that it is...it's even cut way down on the imfamous "brain fog" that most of us suffer with... The hardest thing, for me, was to learn to take care of myself while I was SO busy taking care of the new baby, lazy husband (now long gone) and two teenage daughters..It seems like an impossible task...but it CAN BE done...it's just hard, especially for a mother who normally puts the rest of the family first...before her own needs.. If you don't mind me asking...what kind of meds are you on? I've been extremely blessed in that the only thing I've had to take to manage this stupid condition is prednisone...which is the main weight-putting-on medicine around...I think... The best advice I can give you is to stick with this WOE...listen to your body...and rest whenever you can...I'll answer any questions you have ...at least the ones I have answers for... Keep posting...the support here is fantastic... Lynn |
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11-03-2010, 01:37 AM
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#17 |
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45 and pregnant?!? OMG... OMG... OMG. I'd have one not in Kindergarten yet... OMG OMG OMG. How in the world did you do it??? LOL Guess that ex of yours wasn't completely lazy...
 LOLTril... 49 and happy her youngest is turning 21 next month, not FOUR. 
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12-02-2010, 06:55 PM
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#18 |
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Tril,
Nope that was the one department he wasn't lazy in....lol....as for HOW I did it...I'm assuming you mean BEING pregnant, not GETTING that way...::::: giggles as she types:::::: Getting preggers at 45 is what happens when you marry a man 11 years younger and forget to pay attention to the warnings about how being in the midst of menopause is NOT a sure form of birth control... I LOVED every minute of every one of my pregnancies...remember, I'm the one with SIX kids... This one wasn't all that different, except for the fact that my oldest daughter was preggers at the same time...My first grandchild (boy) was born 18 days before my son...and grandchild #2 (also a boy) was born eight days after his uncle...The Lord blessed our family with three healthy little boys in 26 days... I've always been blessed in the fact that I've been able, except for a couple of very short periods, to be a stay at home mom...And now I help with the grandkids as much as possible...again, loving every minute of it.... Enough of this off topic saga....How are things going with you? I've sort of lost track of where things are with your housing...buying or building? Lynn |
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